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Action Duchenne Calls For An End To The Scandalous Postcode Lottery Of Treatment For Boys And Young Men Living With Duchenne Muscular Dystrophy
Standards of Care Survey shows that over a third of all parents of children living with Duchenne feel that their child receives sub-standard medical care.
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'Complacency,' 'Stigma' Hindering Efforts To Reduce HIV/AIDS In Black Communities, Opinion Piece Says
"Nearly 30 years after the discovery of HIV and AIDS, the epidemic is still ravaging black neighborhoods in Baltimore and across the nation," Kevin Fenton -- director of CDC"s National Center for HIV/AIDS, Viral Hepatitis, STD and TB Prevention -- writes in a Baltimore Sun opinion piece. Fenton writes that "complacency about HIV and the continued stigma associated with the disease are hindering progress by preventing too many African-Americans from seeking either HIV testing and treatment or support from their friends and family," adding that "this is a challenge that can be overcome."According to Fenton, the Obama administration last month "took an important step in confronting the United States" HIV epidemic" when CDC and White House officials announced a five-year campaign called Act Against AIDS, which is "designed to refocus the nation"s attention on the HIV crisis here at home." Fenton notes that 14 black civic organizations -- including the NAACP, the National Urban League, the Southern Christian Leadership Conference and the National Council of Negro Women -- are "joining the CDC to increase knowledge, awareness and action within black communities across the country." He adds that the campaign "will harness the strength and reach of these organizations by enhancing their ability to make HIV prevention a core component of their daily activities." "By raising the visibility of HIV and AIDS, the new campaign also aims to confront and overcome the fear and stigma that help keep HIV alive in black communities," Fenton says. He adds that he has "been encouraged in recent years to see black leaders, including black faith leaders, speak out more openly across the nation about the need to confront HIV and the stigma that persists surrounding this disease." Fenton writes that "[e]nding this epidemic will require not only frank and difficult discussions about HIV but also a shared sense of responsibility and commitment," concluding, "All of us can and must be part of the solution" (Fenton, Baltimore Sun, 5/27).
News of the day
Johns Hopkins Patient Safety Program Receives Healthcare Informatics Magazine's 2009 Innovator Award
Johns Hopkins Medicine"s patient safety program has earned second place in Healthcare Informatics magazine"s eighth annual Innovator Awards.
Diagnostics

Reform Questions, Myths, Comparisons Unwound

With the possibility of a major health care overhaul looming on the horizon, commentators, analysts and advocates have been seeking out points of comparison. When it comes to actually accomplishing major reforms, many look to President Johnson"s successful push in 1965 to enact Medicare, the insurance program that covers America"s elderly. One key difference between Johnson and Obama"s travails, the Associated Press reports, is a matter of scale. "Medicare was big. This could be bigger. If a bill passes, Americans probably will be discovering - and debating - its effects for years." The AP points out that after Medicare was signed into law on July 30, 1965, the elderly began receiving health benefits 11 months later. Meanwhile, if Obama signs the House version of the current reform proposal into law, it could take "the better part of a decadeň€¦ to get all the components of the far-reaching proposal up and running." A timeline produced by the AP shows the role of the federal government increasing each year over that time (Alonso-Zaldivar, 7/20). Meanwhile, the Wall Street Journal offers a "Frequently Asked Questions" list for health reform initiates. "It is crunch time for health care. Lawmakers who are trying to fundamentally remake one-sixth of the U.S. economy say this might be the most complicated legislation they have undertaken," the Journal says, offering answers to these questions, and more: "Can Democrats and Republicans agree on anything?", "What would a public plan look like?" and "What happens if the effort once again fails?" (Adamy, 7/21). This information was reprinted from kaiserhealthnews.org with kind permission from the Henry J. Kaiser Family Foundation. You can view the entire Kaiser Daily Health Policy Report, search the archives and sign up for email delivery at kaiserhealthnews.org. © Henry J. Kaiser Family Foundation. All rights reserved.


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